Hi My name is Mendy Cooper and I am 7 years old. I have 2 adoring sisters and 2 awesome brothers and a Mummy and Tatty who love me. and I have Angelman Syndrome. My family say I am pretty cute, happy and cheeky. I also have seizures, sleep issues,  am still learning to walk, I’m non verbal  and have to work very hard to do everyday things. Things are definitely not always so easy for me. But I try my hardest and usually with a smile.   

To mark International Angelman day together with my dear family we are doing a fundraiser to raise funds for the new very promising treatment to help me and my fellow friends around the world.  Your donation will make a difference.   

With your help, we CAN cure Angelman syndrome. Please join me in my 2021 FAST Australia Cure Angelman Now (CAN) campaign by sharing my message, making a donation, or both.

 In the United States, research funded by FAST identified a way to turn on a gene that is normally turned off in the brain. FAST US took this discovery and started its own biotechnology company to move this technology from the laboratory into human clinical trials. Trials were initiated in 2020 and early preliminary results suggest this therapeutic may effectively treat the symptoms of Angelman syndrome. 

I have more exciting news - this approach is just one of the ways FAST is leading the efforts to develop effective treatments for Angelman syndrome. FAST funds multiple programs aimed at developing therapeutics to treat the root cause of Angelman syndrome as well as therapeutics that may treat certain symptoms. In Australia, FAST funds the Global Angelman Syndrome Registry, the largest collection of information of Angelman syndrome data in the world, a very powerful tool in the development, assessment and ultimate accessibility of therapeutics for Angelman syndrome. We are also working tirelessly to ensure promising clinical trials and the very best standard of care can be accessed by Australian families, in Australia.  In fact, FAST Australia is the only funder of  Angelman specific research in this country and they rely on grass root donors like me & you to support these ground breaking programs.

 I look forward to sharing amazing updates and progress with you throughout the year and I thank you for assisting me to Cure Angelman Now.

 Please help me reach this goal. Together with my family. Thank you so much in advance for your generosity.