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AUD $2,820 of AUD $3,000 target.

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Ava Walton

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Ava Walton

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Hi, my name is Ava Walton, I’m 11 years old and live in Townsville, Australia. My little sister Indie is 1 year old and has Angelman Syndrome; I want to raise money to help FAST cure AS so she can have an easier life! 

I want to support not only this cause but another as well so if I can raise $2,000 I am going to cut my hair and donate it to Cancer Councils Ponytail Project.

***Update***

Goal reached, so grateful! I want to donate 36cm+ to the pony tail project as they specifically use that to make wigs for kids with cancer or alopecia. I’m going to keep the fundraiser going for a little longer to give my hair a chance to grow in the hopes I can reach the 36+ goal, it’s currently 29cm. 

Thank you very much for your support x

**************************************************

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I have big news! With your help, we CAN cure Angelman syndrome. Please join me in my 2021 FAST Australia Cure Angelman Now (CAN) campaign by sharing my message, making a donation, or both.

 

In the United States, research funded by FAST identified a way to turn on a gene that is normally turned off in the brain. FAST US took this discovery and started its own biotechnology company to move this technology from the laboratory into human clinical trials. Trials were initiated in 2020 and early preliminary results suggest this therapeutic may effectively treat the symptoms of Angelman syndrome.

 

I have more exciting news - this approach is just one of the ways FAST is leading the efforts to develop effective treatments for Angelman syndrome. FAST funds multiple programs aimed at developing therapeutics to treat the root cause of Angelman syndrome as well as therapeutics that may treat certain symptoms. In Australia, FAST funds the Global Angelman Syndrome Registry, the largest collection of information of Angelman syndrome data in the world, a very powerful tool in the development, assessment and ultimate accessibility of therapeutics for Angelman syndrome. We are also working tirelessly to ensure promising clinical trials and the very best standard of care can be accessed by Australian families, in Australia.  In fact, FAST Australia is the only funder of  Angelman specific research in this country and they rely on grasss roots donors like me & you to support these ground breaking programs.

 

I look forward to sharing amazing updates and progress with you throughout the year and I thank you for assisting me to Cure Angelman Now.

 

Please help me reach this goal. Thank you in advance for your generosity.

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AUD $5,000 of AUD $5,000 target

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    Foundation for Angelman Syndrome Therapeutics Australia Limited

    The Foundation for Angelman Syndrome Therapeutics Australia (or FAST Australia) is an organisation of families and professionals dedicated to assisting individuals living with Angelman Syndrome to realise their full potential and quality of life through funding research, education, and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.

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