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Christoph Tautphaeus
Running for Angelman - Christoph Tautphaeus
Story
Hi there!
Angelman Syndrome is a rare genetic disorder, a whim of nature, characterised by severe developmental delay, learning disabilities, absence of speech, seizures and sleep disorders.
We want to support the FAST organisation (cureangelman.org.au) to find or enable future therapies / medication for these genetic disorders which helps these kids to develop their motor skills and their speech. Some companies already have substances in their pipeline and others are running clinical trials. But a lot of research still needs to be done.
Donations made through this platform are secure and will be remitted directly through to my charity of choice.
Thanks so much for your support!
Christoph
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Foundation for Angelman Syndrome Therapeutics Australia Limited
The Foundation for Angelman Syndrome Therapeutics Australia (or FAST Australia) is an organisation of families and professionals dedicated to assisting individuals living with Angelman Syndrome to realise their full potential and quality of life through funding research, education, and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.
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